Duchenne muscular dystrophy
07-07-2020, 07:05 AM
#2
Super Moderator
Join Date: Jan 2010
Posts: 2,225
How do you know that there are signs and they mean this condition/disease? Have you taken him to a doctor? If you are concerned about cost, talk to the doctor, who very likely can have someone in the office help discuss options. But in the meantime, your son would be clearly diagnosed - is it possible it could be something else? You may like to get a second opinion!
I am so sorry your son is having any signs at all. My husband and I went through a situation in which our son was scheduled for surgery, which we had not realized could be so dangerous. At the last minute, another doctor noticed a lab test was missing and they canceled the surgery and changed the diagnosis completely. To this day, I remember that period in our lives as being very cloudy and chaotic, and I still don't know how our son emerged from it without a clear understanding of his condition. Please realize you are not alone in the uncharted waters of medical care and you can ask for help! Ask your doctor, ask any therapist (they have a good grasp, usually, of the social services available to deal with stresses of illness, and sometimes those stresses are financial!)
I am so sorry your son is having any signs at all. My husband and I went through a situation in which our son was scheduled for surgery, which we had not realized could be so dangerous. At the last minute, another doctor noticed a lab test was missing and they canceled the surgery and changed the diagnosis completely. To this day, I remember that period in our lives as being very cloudy and chaotic, and I still don't know how our son emerged from it without a clear understanding of his condition. Please realize you are not alone in the uncharted waters of medical care and you can ask for help! Ask your doctor, ask any therapist (they have a good grasp, usually, of the social services available to deal with stresses of illness, and sometimes those stresses are financial!)
