I was recently diagnosed with PCOS by my GP, but my only symptoms are mindblowing period pains and a load of cysts on my ovaries. (It's a syndrome, so there are a lot of components to it. I'm not entirely sure I've actually got PCOS and not something else.)
I'm not really pursuing treatment right now, but did encounter a really useful forum
. Ladies there know their stuff! They often mention getting hormones checked, as Crimpet's suggested.
At that site, I learned that:
- the causes of PCOS aren't entirely understood (some say it's related to insulin resistance, for example)
- the different aspects of the syndrome are treated with different treatments. (eg infertility with metformin; male pattern hair growth with cosmetic solutions like electrolysis and/or birth control pill - though the bcp also somehow regulates egg release)... it's all pretty complicated and this is from memory - do check that and other sites!
- an endocrinologist is really the person best placed to make the diagnosis, though because symptoms show up in relation to menstruation, you may get a referral to a gyno instead, if at all
So... since your symptoms are severe, and PCOS is kind of an octopus, I guess it's important for you to read as much as you can to work through this with your doctor.
Sorry I can't be of more help, glad you're asking though!
Edit: I focused on info above. You also have my sympathy, what you're going through sounds horrible!
When I have my period - just for that one week, god, can't imagine it for a month - I cover
my abdomen and lower back with hot water bottles. I have 3. That, with the prescription pain meds, helps with the pain.
But fight to get this thing understood and under control! It might take a fight...